Nina Frost — Founder and President of RARE Hope, Nina Frost is a rare disease advocate and research leader who co‑authored the recent in vivo prime editing study in Alternating Hemiplegia of Childhood (AHC). News-Medical She founded RARE Hope (formerly HOPE for Annabel) in response to her daughter’s diagnosis, and acts as a strategic hub between patient communities, scientists, and funding networks to accelerate scalable therapy development.