Cheryl-Lynn Townsin
Founder,
Lexi's Legacy
Cheryl-Lynn Townsin is a Canadian advocate based in Victoria, British Columbia. After her daughter Lexi was diagnosed with Blau Syndrome, a rare auto-inflammatory disease, Cheryl-Lynn co-founded the Cure Blau Syndrome Foundation to support research and raise awareness. Since Lexi’s passing at the age of six in 2019, Cheryl-Lynn has continued to lead advocacy efforts for families affected by rare diseases. She produced the documentary RARE HUMANS – Turning Hope into Action, which follows eight families, including her own, as they navigate the challenges of rare diagnoses. Cheryl-Lynn also serves as director of A Million Acts of Love, a youth-led initiative founded by her son Felix in memory of Lexi. A Million Acts of Love promotes acts of kindness and provides grants to empower young changemakers.


