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Bo Bigelow - Rare Disease Film Festival and The Disorder Channel

Bo Bigelow

Co-Founder, Rare Disease Film Festival and The Disorder Channel
Bo is a writer, author, and attorney. He became a rare-disease advocate when his daughter Tess was born with a USP7 mutation. When genetic testing reached a dead end for Tess, Bo and his wife successfully used social media to launch their search for answers and connect with researchers at Baylor College of Medicine. He made a short film about their search. https://youtu.be/S0ifMlRvmNk He hosts a blog and weekly podcast called Stronger Every Day, about the challenges of raising Tess. He is also a co-founder of Disorder: The Rare Disease Film Festival. Bo holds a B.S. from Georgetown University and a law degree from New York University School of Law. He is of counsel to Murray, Plumb & Murray, a law firm in Portland, Maine.

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