Sharon King is a passionate patient advocate and rare disease thought leader with over two decades of experience uniting public officials, researchers, industry leaders, and fellow advocates to advance rare disease treatments and policies. She is co-founder and president of Taylor’s Tale, a nonprofit named in honor of her late daughter, which has grown from a grassroots effort into a national force for CLN1 disease (Batten disease) research and rare disease advocacy. As senior lead of Advocacy at Aldevron, Sharon fosters collaboration and education across stakeholder communities to drive progress in drug manufacturing. She is a state-appointed member of the North Carolina Advisory Council on Rare Diseases—established by a law named for her daughter—and serves as Program Chair on the Emily Whitehead Foundation Board of Directors. Sharon is also a member of the ASGCT Patient Education Committee and a former member of the Rare Disease InfoHub steering committee. Her lived experience as a caregiver fuels her commitment to building integrated, patient-centered support systems for families navigating rare diseases.