
Cheryl-Lynn Townsin
Founder
Lexi's Legacy
Cheryl-Lynn Townsin is a Canadian advocate based in Victoria, British Columbia. After her daughter Lexi was diagnosed with Blau Syndrome, a rare auto-inflammatory disease, Cheryl-Lynn co-founded the Cure Blau Syndrome Foundation to support research and raise awareness.
Since Lexi’s passing at the age of six in 2019, Cheryl-Lynn has continued to lead advocacy efforts for families affected by rare diseases. She produced the documentary RARE HUMANS – Turning Hope into Action, which follows eight families, including her own, as they navigate the challenges of rare diagnoses.
Cheryl-Lynn also serves as director of A Million Acts of Love, a youth-led initiative founded by her son Felix in memory of Lexi. A Million Acts of Love promotes acts of kindness and provides grants to empower young changemakers.
Speaking In
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18-Jun-2025The Disorder Channel Film - RARE HUMANS: Turning Hope into ActionStorytelling Stage (Booth #349)