• June 16-19, 2025
  • Boston Convention & Exhibition Center

Sessions

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Global Policy Perspectives on the Next Generation of Rare Disease Medicines

Monday, June 03, 2024
Breakout Session
Orphan and Rare Disease
28ABCDE
This session will explore how the global policy landscape for rare disease medicines is evolving and the implications for patient access and continued investment into innovative new orphan drugs.
Moderator
Jannie Oosthuizen
President, Merck Human Health U.S.
Merck
Speakers
Karin Hoelzer, DVM, PhD
Senior Director, Policy and Regulatory Affairs
National Organization for Rare Disorders (NORD)
Durhane Wong-Rieger, PhD
President & CEO
Canadian Organization for Rare Disorders (CORD)
Ryan MacFarlane, PhD
Vice President
Access Partnership
His Excellency Mansoor Al Mansoori
Abu Dhabi Executive Council Member and Chairman of the Department of Health
Abu Dhabi

Sponsored by:

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