• June 16-19, 2025
  • Boston Convention & Exhibition Center

Sessions

Loading

Getting Personal: How the Evolving U.S. Privacy Legal Landscape Impacts Biomedical Research

Tuesday, June 04, 2024
Breakout Session
AI and Digital Health
24BC
Patchwork privacy legislation across the states, federal regulations, and varying privacy rules around the world create confusion and operational burdens that hinder coordination and collaboration amongst research partners. The U.S. based biopharmaceutical sector stands ready to deliver breakthrough innovations globally and we believe that harnessing health data for biomedical R&D is and can continue to be done without impinging on the legitimate protections of patients’ privacy rights. This panel of experts from government and industry will explore how overly burdensome restrictions on data collection, use, and sharing for healthcare and research purposes have the potential to significantly disrupt ongoing research and development activities, frustrate global collaborations, and compromise U.S. leadership in the life sciences.
Moderator
Justin Pine
Senior Director
Biotechnology Innovation Organization (BIO)
Speakers
Kimberly Gold
Chief Privacy Officer
Genentech
Carla Cartwright
Head Global Digital and Regulatory Policy
Johnson & Johnson
David Schwartz
Partner
Arnold & Porter
Paul Friedrichs, MD
Maj. Gen. (ret), Deputy Assistant to the President
Director of the Office of Pandemic Preparedness and Response at the White House
Back to Session List

BIO DOUBLE HELIX SPONSORS

Thanks to our sponsors for supporting our mission to drive a revolution to cure patients, protect our climate, and nourish humanity.

Loading

BIO HELIX SPONSORS