Connect with members of these patient advocacy organizations while you're at BIO 2024. You can also learn about BIO's Patient Advocacy efforts at the Patient Advocacy Pavilion in booth 3019.
AiArthritis
Tiffany Westrich-Robertson
CEO
tiffany@aiarthritis.org
https://www.aiarthritis.org
Alliance for Aging Research
Michael Ward
VP of Public Policy and Gov Relations
Mward@agingresearch.org
https://www.agingresearch.org
Alliance for Patient Access
Josie Cooper
Executive Director
202-951-7097
info@allianceforpatientaccess.org
https://allianceforpatientaccess.org/
The ALS Association
Melanie Lendnal
Senior Vice President, Policy & Advocacy
melanie.lendnal@als.org
https://www.als.org/
American Kidney Fund
Holly Bode
Vice President of Government Affairs
202-361-8275
hbode@kidneyfund.org
https://www.kidneyfund.org/
American Kidney Fund
Melanie Paris
Senior Director of Strategic Partnerships and Kidney Disease Education
614-352-9401
mparis@kidneyfund.org
https://www.kidneyfund.org/
Amputee Coalition
Shree Thaker
Director of Communications & Partnerships
301-848-0737
sthaker@amputee-coalition.org
https://www.amputee-coalition.org/
Arthritis Foundation
Anna Hyde
Vice President of Advocacy and Access
713-858-3829
ahyde@arthritis.org
https://www.arthritis.org/
Asthma and Allergy Foundation of America
Jenna Reimenschneider
Senior Director, Policy & Advocacy
703-220-9294
jennar@aafa.org
http://www.aafa.org
Autoimmune Association
Amy Phillips
Strategic Alliance Director
202-800-7050
amy@autoimmune.org
https://autoimmune.org/
Beyond Celiac
Eric White
Director, Business Development and Strategic Alliances
651-315-3539
ewhite@beyondceliac.org
https://www.beyondceliac.org/
CANCERcare
Kim Czubaruk
Associate Vice President, Policy
703-200-6589
kczubaruk@cancercare.org
https://www.cancercare.org
Diabetes Patient Advocacy Coalition
Erin Callahan
Chief Operating Officer
773-620-5098
ecallahan@diabetespac.org
https://www.diabetespac.org/
Diabetes Patient Advocacy Coalition
Laura Blake
Director of Operations
716-880-7177
lablake@diabetesleadership.org
https://www.diabetesleadership.org/
Global Alzheimer's Platform Foundation
Lammert Albers
Chief Commercial Officer
203-464-7048
lalbers@globalalzplatform.org
https://globalalzplatform.org/about/
Global Genes x RARE-X
Nicole Boice
Founder & Chief Mission Officer
careaboutrare@globalgenes.org
https://globalgenes.org/
I-ACTC
AJ Allen
Chief Medical Officer
301-605-7571
aj.allen@iactc.org
https://iactc.org
Looms for Lupus
Estela Mata
President
626-712-5954
estela.mata@looms4lupus.org
https://looms4lupus.org
Lupus and Allied Diseases Association
Kathleen Arntsen
President and CEO
315-264-9101
kathleen@ladainc.org
https://www.ladainc.org
Lymphoma Research Foundation
Victor Gonzalez
Senior Director of Patient Programs and Support Services
646-465-9128
vgonzalez@lymphoma.org
https://www.lymphoma.org/
Masse World
Raissa Levy
Founder & President
301-806-9967
rlevy@masseworld.org
www.MasseWorld.org
Mental Health America
Nathan Tatro
Vice President of Alliance Development
571-317-5958
ntatro@mhanational.org
https://www.mhanational.org/
National Bleeding Disorders Foundation
Nathan Schafer
Senior Vice President of Public Policy & Access
917-755-2483
nschaefer@bleeding.org
https://www.bleeding.org/
National Bleeding Disorders Foundation
Dawn Rotellini
Chief Operating Officer
DRotellini@bleeding.org
https://www.bleeding.org/
National Health Council
Eric Gascho
Senior Vice President, Policy and Government
202-973-0546
egascho@nhcouncil.org
https://nationalhealthcouncil.org/
National MS Society
Schedule a meeting with us via the BIO Partnering System
nationalMSsociety.org
National Organization for Rare Disorders (NORD)
Patrick Collins
Vice President, Corporate Relations
610-505-7051
pcollins@rarediseases.org
https://rarediseases.org/
National Psoriasis Foundation
Jason Harris
Vice President, Government Relations and Advocacy
617-909-6930
Jharris@psoriasis.org
https://www.psoriasis.org/
PAN Foundation
Liz Eckert
VP of Marketing & Communications
comms@panfoundation.org
https://www.panfoundation.org/
Prevent Blindness
Jeff Todd
President + CEO
773-818-8108
jtodd@preventblindness.org
https://preventblindness.org
Sepsis Alliance
Savannah Stark
Vice President, Development and Operations
sstark@sepsis.org
https://sepsis.org
Sick Cells
Arielle Krahenbuhl
Operations and BD Coordinator
akrahenbuhl@sickcells.org
https://sickcells.org/
Solve M.E.
Emily Taylor
President & CEO
etaylor@solvecfs.org
https://solveme.org/
Syngap Research Fund
Michael Graglia
Co-Founder & Managing Director
650-441-4191
Mike@cureSYNGAP1.org
https://curesyngap1.org/
Undiagnosed Diseases Network Foundation
Amy Gray
CEO
305-301-4157
amy@udnf.org
https://udnf.org