Sponsored by: Alkermes, Amgen, Eli Lilly and Company, and Genentech
The BIO Patient Advocacy Pavilion is a dynamic space centrally located in the BIO Exhibition that provides a forum for BIO attendees to meet with and explore potential collaborations between the biopharmaceutical industry and the nonprofit disease community to expedite the development of new and novel treatments. The Pavilion was created to provide patient advocacy organizations, venture philanthropies, and the biotechnology industry with unique partnering and networking opportunities to advance their shared goal of developing innovative medicines to fight and cure disease and improve the lives of patients.
Connect with venture philanthropy and patient advocacy organizations for unique partnership opportunities to advance your research and drug development agendas.
Organizations at BIO 2019:
In addition to raising awareness, developing policy agendas, and advocating on behalf of patients and caregivers, these organizations are also helping to drive the development of new medicines for patients by funding research, developing patient registries, and collecting patient preference information.
Accelerated Cure Project for Multiple Sclerosis
Alliance for Aging Research
Alliance for Patient Access
Alliance for Safe Biologic Medicines
American Autoimmune Related Diseases Association
American Cancer Society Cancer Action Network
American Chronic Pain Association
American Kidney Fund
Anal Cancer Foundation
Biden Cancer Initiative
Cancer Support Community
Caregiver Action Network
Charcot-Marie-Tooth Research Foundation
Colorectal Cancer Alliance
Crohn's & Colitis Foundation
EveryLife Foundation for Rare Diseases
Friends of Cancer Research
Global Colon Cancer Association
Global Lyme Alliance
Hereditary Neuropathy Foundation
Huntington’s Disease Youth Organization (HDYO)
International Alliance of Patients' Organizations
JDRF T1D Fund
Leukemia & Lymphoma Society
Lupus and Allied Diseases Association
Lupus Foundation of America
March of Dimes
Mental Health America
Muscular Dystrophy Association
Myotonic Dystrophy Foundation
NAMI Montgomery County Pennsylvania
National Alliance for Caregiving
National Alliance on Mental Illness
National Diabetes Volunteer Leadership Council
National Health Council
National Infusion Center Association
National Multiple Sclerosis Society
National Organization for Rare Disorders
National Osteoporosis Foundation
National Psoriasis Foundation
New York Stem Cell Foundation
Sickle Cell Disease Association of America, Inc. (SCDAA)
Society for Women's Health Research
The ALS Association Greater Philadelphia Chapter
The Center for Patient Advocacy Leaders @ The AIDS Institute
The Gregory Foundation for Cancer Research
The Michael J. Fox Foundation for Parkinson’s Research
The National Ovarian Cancer Coalition
Tourette Association of America
Tuberous Sclerosis Alliance
United Mitochondrial Disease Foundation
United Spinal Association
US Pain Foundation
Young People in Recovery
*As of March 20, 2019.
Exclusive Interview with the National Alliance for Caregiving
"The BIO Patient Advocacy Pavilion gave us a chance to meet
people face-to-face and connect in a way that phone and email doesn't allow.
Meeting real people and doing awesome work together in person is an invaluable
Watch this short video and learn about two projects and partnerships that were initiated in the Patient Advocacy Pavilion.
Patient Advocacy Reception
Wednesday, June 6 4:30 pm to 5:30 pm BIO Patient Advocacy Pavilion, Booth #134
Did you know that patient advocacy organizations held 370 partnering meetings at BIO2017?
You are invited to meet and connect further with more than 60 patient advocacy organizations, at BIO2018 to learn more about advocates’ priorities, opportunities and missions.
Many patient advocacy organizations partner with the innovative biopharmaceutical sector on drug discovery and clinical development initiatives, enrollment optimization, clinical protocol and trial design. Join us in the BIO Patient Advocacy Pavilion to connect with patient advocacy organizations to explore these unique partnership opportunities.
Plus, stop by on Tuesday during the Exhibitor Hospitality Receptions to meet and greet with the organizations!