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Patient Advocacy Pavilion

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 Sponsored by: Alkermes, Amgen, Eli Lilly and Company, and Genentech 

The BIO Patient Advocacy Pavilion is a dynamic space centrally located in the BIO Exhibition that provides a forum for BIO attendees to meet with and explore potential collaborations between the biopharmaceutical industry and the nonprofit disease community to expedite the development of new and novel treatments. The Pavilion was created to provide patient advocacy organizations, venture philanthropies, and the biotechnology industry with unique partnering and networking opportunities to advance their shared goal of developing innovative medicines to fight and cure disease and improve the lives of patients. 

Connect with venture philanthropy and patient advocacy organizations for unique partnership opportunities to advance your research and drug development agendas.  

Organizations at BIO 2019:

In addition to raising awareness, developing policy agendas, and advocating on behalf of patients and caregivers, these organizations are also helping to drive the development of new medicines for patients by funding research, developing patient registries, and collecting patient preference information.

• Accelerated Cure Project for Multiple Sclerosis
• Aimed Alliance
• AliveAndKickn
• Alliance for Aging Research
• Alliance for Patient Access
• Alliance for Safe Biologic Medicines
• Alpha-1 Foundation 
• American Autoimmune Related Diseases Association
• American Cancer Society Cancer Action Network
• American Chronic Pain Association
• American Kidney Fund 
• Anal Cancer Foundation 
• Arthritis Foundation
• Beyond Celiac
• Biden Cancer Initiative
• BrightFocus Foundation 
• Cancer Support Community
• CancerCare
• Caregiver Action Network
• Charcot-Marie-Tooth Association 
• Charcot-Marie-Tooth Research Foundation 
• Colorectal Cancer Alliance
• COPD Foundation
• Crohn's & Colitis Foundation
• CureDuchenne
• Emily's Entourage 
• Epilepsy Foundation
• EveryLife Foundation for Rare Diseases
• Friends of Cancer Research 
• Global Colon Cancer Association 
• Global Genes
• Global Lyme Alliance
• Hereditary Neuropathy Foundation
• Huntington’s Disease Youth Organization (HDYO) 
• International Alliance of Patients' Organizations 
• JDRF T1D Fund
• Leukemia & Lymphoma Society
• Lipodystrophy United
• LUNGevity
• Lupus and Allied Diseases Association
• Lupus Foundation of America
• March of Dimes
• Mental Health America
• Muscular Dystrophy Association
• Myotonic Dystrophy Foundation
• NAMI Montgomery County Pennsylvania
• National Alliance for Caregiving
• National Alliance on Mental Illness
• National Diabetes Volunteer Leadership Council
• National Health Council
• National Infusion Center Association
• National Multiple Sclerosis Society 
• National Organization for Rare Disorders 
• National Osteoporosis Foundation 
• National Psoriasis Foundation
• New York Stem Cell Foundation
• Parkinson's Foundation
• Patients Rising
• RetireSafe
• Shatterproof 
• Sick Cells
• Sickle Cell Disease Association of America, Inc. (SCDAA)
• Society for Women's Health Research
• Team Telomere
• The ALS Association Greater Philadelphia Chapter
• The Center for Patient Advocacy Leaders @ The AIDS Institute
• The Gregory Foundation for Cancer Research
• The Michael J. Fox Foundation for Parkinson’s Research
• The National Ovarian Cancer Coalition 
• Tourette Association of America
• Tuberous Sclerosis Alliance
• United Mitochondrial Disease Foundation
• United Spinal Association 
• US Pain Foundation
• Young People in Recovery

*As of March 20, 2019.

Exclusive Interview with the National Alliance for Caregiving

Watch this short video and learn about two projects and partnerships that were initiated in the Patient Advocacy Pavilion.

Patient Advocacy Reception

Wednesday, June 6
4:30 pm to 5:30 pm
BIO Patient Advocacy Pavilion, Booth #134

Did you know that patient advocacy organizations held 370 partnering meetings at BIO2017?  

You are invited to meet and connect further with more than 60 patient advocacy organizations, at BIO2018 to learn more about advocates’ priorities, opportunities and missions. 

Many patient advocacy organizations partner with the innovative biopharmaceutical sector on drug discovery and clinical development initiatives, enrollment optimization, clinical protocol and trial design.  Join us in the BIO Patient Advocacy Pavilion to connect with patient advocacy organizations to explore these unique partnership opportunities.

Plus, stop by on Tuesday during the Exhibitor Hospitality Receptions to meet and greet with the organizations!