EB Research Partnership
- Patient advocacy
EB Research Partnership (EBRP) is the largest global organization dedicated to funding research to treat and cure Epidermolysis Bullosa (EB).
EB attacks the skin — not just the skin we see, but also the skin inside of us. The resulting wounds never heal. Disfigurement, blisters, bleeding, and ever-present pain follow.
It is lethal for many of the children born with it.
But that is changing. Through the hard work of scientists, we’re on the precipice of a cure. Not only that, but the methodology we’ve pioneered to develop a cure holds the key to helping millions suffering from rare diseases.
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