Exploring the Uncharted: Rare Diseases, Unintended Consequences of the Inflation Reduction Act, and Demonstrating the Value of These Therapies
Tuesday, June 04, 2024
Breakout Session
Orphan and Rare Disease
30DE
President Biden signed the Inflation Reduction Act into law on August 16, 2022. Almost two years later, our panel will evaluate how the law has impacted rare disease research and development. Our expert panel will provide insights into how the Act's provisions could influence treatment affordability and availability for rare disease patients. Our panel will also touch on how to demonstrate the value of rare disease therapies in the space. This session is designed to spark a constructive dialogue among advocates, policymakers, and other stakeholders.
Moderator
Speakers
Senior Director, Policy and Regulatory Affairs
National Organization for Rare Disorders (NORD)
Sponsored by:
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